Woman allergic to water left 'burning' from her own tears or sweat

A YouTube star who is allergic to water has revealed she can't sweat, cry or wash herself without breaking out in painful rashes.

Niah Selway has aquagenic pruritus, which causes her body to burn for 'hours on end' if her skin comes into contact with water.

The 21-year-old, from Hastings, East Sussex, said the burning lasts for hours and she often passes out from exhaustion following a reaction.  

She said the condition, which has no known cause and is difficult to diagnose, has even left her housebound. 

When she cries, her tears bring out a painful rash, and long soaks in the bath are out of the question because they trigger burning inflammation. 

Ms Selway's organs are not affected by the disorder, meaning she is still able to drink water.

She said: 'It doesn't matter where the water touches me, if a drop touches my arm the pain will spread to my back and torso, sometimes to my whole body.

Niah Selway from Hastings, East Sussex, suffers from aquagenic pruritus, which causes her 'whole body to burn for hours on end' if her skin comes into contact with water

Niah Selway from Hastings, East Sussex, suffers from aquagenic pruritus, which causes her 'whole body to burn for hours on end' if her skin comes into contact with water

The 21-year-old (pictured with her boyfriend Mark) said the burning lasts for hours and she often passes out from exhaustion following a reaction

The 21-year-old (pictured with her boyfriend Mark) said the burning lasts for hours and she often passes out from exhaustion following a reaction

'When I have a bath my whole body burns for hours on end. Over time I worked out a routine, either way it's painful but I have found ways to make it a little less traumatic.

'For instance, I don't wash my hair in the bath anymore, I do it separately to feel less pain.

'There are so many things people don't think about, such as sweat and tears.

'Sometimes I'll have a reaction on my body, I'll start crying because of it and have one on my face too.'

Ms Selway's thigh turns blotchy and burns after coming into contact with water

Her hand in a rash after dropping water on it

The YouTube star's thigh after breaking out in painful blotches (left) and a rash spreads on her hand after coming into contact with water (right)

Ms Selway's organs are not affected by the disorder, meaning she is still able to drink water

Ms Selway's organs are not affected by the disorder, meaning she is still able to drink water

The vlogger, who has 130,000 subscribers on YouTube, said she's too scared to go outside in the rain because the reaction on her skin is so severe. 

She's been forced to quit her job at an insurance company while she battles the condition.  

She said: 'I am suffering in a really severe way, and no medication or treatment has had any substantial effect. 

'It is basically a disability because of the things I can no longer do. In the morning I get to the toilet and I'll have an allergic reaction to the first thing I do.

WHAT IS AQUAGENIC PRURITUS?

Aquagenic pruritus causes its sufferers to experience intense itching when they come into contact with any water.

Its cause is unclear but may be a side effect of conditions such as polycythemia vera, which is a type of blood cancer.

Aquagenic pruritus may also occur as a result of increased circulating histamine levels or as a side effect of certain medications. 

There is evidence the disorder may run in families. 

The condition's prevalence is unknown.   

Such itching most commonly occurs on the legs, followed by the arms, chest, back and abdomen. 

Treatment is challenging due to the disorder being poorly understood.

Therapies often include antihistamines, pain relievers and UV-based treatments. 

Source: National Center for Advancing Translational Sciences 

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