Our columnists Steph and Dom share their heartbreaking struggle to help their ...

You know Steph and Dom as an uproarious couple, a spirited duo who are as effervescent as the champagne they adore.

They have appeared as themselves on reality television shows such as Gogglebox, The Jump and Hunted.

They have also written books. They host their own show on Talk Radio and of course they are Inspire's beloved agony aunt and uncle, appearing on these pages each week dispensing advice and good cheer.

 Steph and Dom (pictured) are known for their riotous TV personas but the Inspire agony Aunt and Uncle are set to reveal their private heartache of a chronically ill son

 Steph and Dom (pictured) are known for their riotous TV personas but the Inspire agony Aunt and Uncle are set to reveal their private heartache of a chronically ill son

Yet since they first came to celebrity prominence six years ago, Stephanie and Dominic Parker have deliberately chosen to reveal only the sunny side of their life; a curated view that accentuates the positive and does not dwell on the darkness. Now a new documentary shows what lies beneath their cheerful façade, revealing a family life which although loving, is dappled with much sadness, grief and anxiety.

Can Cannabis Save Our Son? (Channel 4) finds Steph and Dom exploring the contentious subject of medicinal cannabis, in the hope it might alleviate the suffering of their 18 year-old son, Max. He has been chronically ill with severe epilepsy since he was four years old and still suffers over 100 seizures every day. He is also autistic, with the mental age of a six year old, and has to take a cocktail of strong drugs to control his condition. Would it, could it, possibly help him?

'I want to make this clear straightaway, this is not a scientific documentary, it is a personal film,' says Steph in her usual brisk, efficient fashion. 'We just wanted to explore the issues, talk to people and collect anecdotal information.'

The couple want to give clarity to a subject which is confusing for everyone — even for the Parkers themselves, who have been scrutinising the cannabis and cannabidiol issue for years. 'That is what you do if you are the parent of a chronically ill child,' says Steph. 'You are not online at midnight shopping on Zara, you are online at midnight doing this kind of thing.'

First goal? To help clear up some of the misconceptions about medicinal cannabis. 'People say to us: 'Are you going to give your child cannabis?' No, we are not!' she cries. 'Medicinal cannabis is produced in laboratories and all the psychotics and hallucinogens, anything that some might regard as the fun stuff that gets you high, all that has been taken out.'

'A bit like alcohol free lager,' ventures Dom.

Medicinal cannabis hit the headlines last year, when two high profile cases helped bring forward changes in the law to legalise its use within the UK. Thirteen-year-old Billy Caldwell had his medicinal cannabis oil confiscated on his mother's return from Canada, while the family of Alfie Dingley, eight, petitioned the government after they found his condition improved when given a cannabis-based medication in the Netherlands, where it is legal.

Steph and Dom Parker pictured, at their home in Beaulieu, Hampshire, with their children Max, 18, and Honor, 15.

Steph and Dom Parker pictured, at their home in Beaulieu, Hampshire, with their children Max, 18, and Honor, 15.

Both boys have now been granted licences to allow them access to cannabis, but elsewhere the controversial treatment can only be prescribed by specialist doctors in a limited number of circumstances.

Little is known about the anti-epileptic properties of medicinal cannabis, even as experts agree that trials show a reduction in monthly seizures. There are worries about long term repercussions, while some are concerned about its effect on the developing brains of children.

Max's own consultant, who has treated him since he was a baby, is cautious but optimistic — but will he allow Max to have it? There are fears it might react with the drugs Max already takes. And if the Parkers pass that hurdle, can they then access a reliable supply of medicinal cannabis?

After more than a decade of dashed hopes, the couple are realistic enough to keep their dreams for Max on a tight leash. During the documentary they never speak of a miracle cure, but hope for a reduction in the number and intensity of his seizures, as has happened with other epilepsy sufferers who have taken cannabis. 'That alone would be bloody incredible,' says Dom.

Max (second left) has been chronically ill with severe epilepsy since he was four years old and still suffers over 100 seizures every day

Max (second left) has been chronically ill with severe epilepsy since he was four years old and still suffers over 100 seizures every day

And after seeing Max suffer for so long, his parents are desperate to find out if cannabis could make a positive difference to his quality of life, even if they hardly dare voice their modest aspirations for his improvement out loud.

'I would love to see him able to develop relationships and make friends with people his own age,' says Steph.

'I would just love to have a conversation with him,' says Dom.

The best they can expect would be a cessation of his seizures altogether because the damage that has been done to his brain over the years is liable to be irreparable. 'Put it this way,' Dom tells me. 'He is unlikely to suddenly pop up and say to me; 'By the way, dad, remember on my 12th birthday I said no to cake and you gave me cake and I didn't want it?' No, we don't expect anything like that.' The Parkers thought long and hard about exposing not just Max, but also sister Honor, 15, and themselves to the levels of public scrutiny that such a fly on the wall documentary demands.

'It was a big moral decision. Should we expose the most vulnerable part of us and our vulnerable son and our vulnerable family like this?' says Dom.

'But we felt compelled to. Even if I didn't want to do it because I wanted to hide under a stone, I felt I had to,' says Steph.

'To understand the need for the drug, you have to understand the condition.' They both felt it was a rare opportunity to use their celebrity for a good cause. 'I doubt there will be another cause as powerful or meaningful or as honest,' says Steph.

A new Channel 4 documentary will explore if medicinal cannabis will be able to help Max

A new Channel 4 documentary will explore if medicinal cannabis will be able to help Max

While the 60 minute documentary might not come up with any pat solutions to Max's complicated circumstances, it is nevertheless a powerful and moving chronicle of what life is like for families with a catastrophic illness at the heart of the home.

The Parkers' courage and resilience as they endlessly battle with the social, medical and emotional issues of Max's situation might be heartbreaking, but they are also an inspiration.

In the film we first meet Max during last year's long, hot summer at the idyllic cottage in the New Forest where the larger Parker family gather for holidays. Like many teenage boys, he is mad about sports and football, while showing amazing eye-hand co-ordination when playing cricket and tennis. He is home from the special boarding school in Hertfordshire — one of only two in the UK, which cares for children with his type of rare illness and supplies 24-hour care.

His condition closely mimics that of Lennox-Gastaut syndrome, a complex and life-threatening type of epilepsy. His schooling and education is paid for by Kent County Council's Social Department, as the family's main residence is still in Sandwich, Kent near the Salutation Inn, the celebrated hotel they ran.

Steph, who is best known for appearing on Gogglebox with husband Dom, wants to make it clear it's not a scientific experiment but a personal film

Steph, who is best known for appearing on Gogglebox with husband Dom, wants to make it clear it's not a scientific experiment but a personal film

Max also has a trained, full time carer during school holidays, who is clearly devoted to him. Kent County Council fund around five hours of this care per week for Max, while the Parkers

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