By Kylie Stevens For Daily Mail Australia
Published: 05:37 GMT, 22 March 2019 | Updated: 05:37 GMT, 22 March 2019
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A young car enthusiast stricken with a rare bone disorder has been taken on the ride of his life as he prepares to undergo the next phase of a revolutionary drug trial.
Sydney teenager Zach Armstrong, 13, couldn't believe his eyes when a 1960s Kombi recently turned up in his driveway to take him on a drive ahead of one of his frequent flights to Brisbane for treatment and tests.
CareFlight went the extra mile to organise the special surprise with Klassic Kombiz to make Zach's latest trip up north less daunting.
Sydney teenager Zach Armstrong prepares for yet another CareFlight trip to Brisbane
Zach, 13, has fibrodysplasia ossificans progressiva, a rare genetic disorder, which has no cure or approved treatment.
Also known as stone man syndrome, the rare disorder causes Zach's ligaments and muscle tissue to turn into bone, progressively paralysing his body.
It's estimated the disorder affects just 3,500 people worldwide, or one in two million.
Most patients are bedridden by the age of 20 and have a life expectancy of 40 years.
There is no known cure for the disease, which effectively turns
