Zoey Jones pictured with daughter Eve outside 10 Downing Street (Image: Tim Clarke / DailyExpress)
In a letter to Zoey Jones, Theresa May told how she was “determined” to make drugs such as Orkambi available in the UK “as soon as possible”.
So far, talks to secure a deal with Vertex, the US pharmaceuticalgiant that makes the drug, have fallen through.
Last month Zoey, 37, and her one-year-old daughter Eve delivered 65 yellow roses to No 10.
Each one had a letter written by a CF sufferer wrapped around it.
The number of flowers was significant, because young CF sufferers who cannot pronounce the condition often mistakenly say: “I have 65 roses.”
In her letter, Mrs May thanked Zoey for the flowers and said it was “an incredibly moving reminder of the importance of this issue”.
She wrote: “I am determined to see this resolved as soon as possible so Orkambi can be used to treat cystic fibrosis.
In a letter Theresa May told Zoey how she was determined the make the drugs available in the UK (Image: Getty)
“I am disappointed this has not been achieved yet and I have urged Vertex to do everything they can, working with NHS England and the National Institute of Health and Care Excellence (NICE), to make these drugs available.
“I am pleased discussions have resumed and hope to see swift progress. Only through resolving this