Cystic fibrosis breakthrough: Theresa May vows to sign NHS deal for life-saving ...

Zoey JonesZoey Jones pictured with daughter Eve outside 10 Downing Street (Image: Tim Clarke / DailyExpress)

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In a letter to Zoey Jones, Theresa May told how she was “determined” to make drugs such as Orkambi available in the UK “as soon as possible”.

So far, talks to secure a deal with Vertex, the US pharmaceuticalgiant that makes the drug, have fallen through.

Last month Zoey, 37, and her one-year-old daughter Eve delivered 65 yellow roses to No 10.

Each one had a letter written by a CF sufferer wrapped around it. ​

​The number of flowers was significant, because young CF sufferers who cannot pronounce the condition often mistakenly say: “I have 65 roses.” ​

In her letter, Mrs May thanked Zoey for the flowers and said it was “an incredibly moving reminder of the importance of this issue”.​

She wrote: ​“I am determined to see this resolved as soon as possible so Orkambi can be used to treat cystic fibrosis.​

 

Theresa MayIn a letter Theresa May told Zoey how she was determined the make the drugs available in the UK (Image: Getty)

​“I am disappointed this has not been achieved yet and I have urged Vertex to do everything they can, working with NHS England and the National Institute of Health and Care Excellence (NICE), to make these drugs available.​

​“I am pleased discussions have resumed and hope to see swift progress.​ Only through resolving this

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